Blue Jeans Rare Diseases Awareness Ribbons
The Blue Jeans ribbon has been designated by Global Genes® as a symbol for rare and genetic disease awareness to unify a fractured community of thousands of small diseases that have not had a collective voice.
Rare Diseases Blue Jeans Awareness Ribbons
Blue Jeans Awareness Ribbon for Rare Diseases as Designated by Global Genes®
Our Custom Blue Jeans awareness ribbons and non-personalized Blue Jeans awareness ribbons support this list of Rare Diseases as designated by Global Genes®. This list is extensive to include often under-funded, unknown diseases and disorders that need equal attention to those that receive a great deal of funding and recognition. Sometimes you will see a Rare Disease listed in two places on our website, and one may be associated with a color other than the Blue Jeans awareness ribbon. This is because often times a group has designated a color for a Rare Disease prior to the Blue Jeans awareness ribbon being designated for the entire category of causes.
According to Global Genes®, rare diseases affect 1 in 10 Americans, 30 million people in the United States, and 350 million people globally. Over 7,000 distinct rare diseases exist and approximately 80 percent are caused by faulty genes. The National Institutes of Health (NIH) estimates that 50% of people affected by rare diseases are children, making rare diseases one of the most deadly and debilitating for children worldwide.
How many rare diseases are there?
There may be as many as 7,000 rare diseases. The total number of Americans living with a rare disease is estimated at between 25-30 million. This estimate has been used by the rare disease community for several decades to highlight that while individual diseases may be rare, the total number of people with a rare disease is large.
In the United States, only a few types of rare diseases are tracked when a person is diagnosed. These include certain infectious diseases, birth defects, and cancers. It also includes the diseases on state newborn screening tests. Because most rare diseases are not tracked, it is hard to determine the exact number of rare diseases or how many people are affected.
While individual rare diseases have small patient populations, collectively the rare disease community is larger than the AIDS and Cancer communities combined. Despite its size, the community lacks a unified voice, as only 15% of rare diseases have organizations or foundations providing support or driving research.
It is estimated that 95% of all rare diseases do not have a single FDA approved drug treatment, and there are currently less than 400 treatments approved by the FDA for the nearly 7000 rare diseases which have been identified. According to estimates from the NIH, it will take 10,000 years at the current rate of FDA drug approvals to find therapies for all people suffering from rare diseases.