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Cause Awareness Blog | Support the Struggle | Personalized Cause

Our cause awareness blog provides knowledge and educational information to advocate for cancer, medical, social and psychological illnesses and/or causes. 

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Bleeding Disorder Awareness Month

Davis Orr

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It's Bleeding Disorders Awareness Month!

The bleeding disorders community includes more than three million Americans who have hemophilia, von Willebrand disease, and other rare bleeding disorders (called rare factor deficiencies). All of these conditions prevent the blood from clotting the way that it should, which can lead to prolonged bleeding after injury, surgery, or physical trauma. They can even be deadly if not treated correctly.

Normally, if you get hurt, your body forms a blood clot to stop the bleeding. For blood to clot, your body needs cells called platelets and proteins known as clotting factors. If you have a bleeding disorder, you either do not have enough platelets or clotting factors or they don't work the way they should.

There are numerous different bleeding disorders, but the following are the most common ones:

Hemophilia A and B are conditions that occur when there are low levels of clotting factors in your blood. It causes heavy or unusual bleeding into the joints. Though hemophilia is rare, it can have life-threatening complications.

Factor II, V, VII, X, or XII deficiencies are bleeding disorders related to blood clotting problems or abnormal bleeding problems.

von Willebrand's disease is the most common inherited bleeding disorder. It develops when the blood lacks von Willebrand factor, which helps the blood to clot.

(Image: fineartamerica.com)

#blood #bleeding #disorder #bleedingdisorders #vonwillebrand #factors #hemophilia #giveblood #donate #life #savealife #blooddonor #bloodtype #vampire #personalizedcause #genetics #geneticdisorder #runsinthefamily #dangerous #rare #raredisease

Multiple Sclerosis Awareness Month

Davis Orr

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March is Multiple Sclerosis Awareness and Education Month!

Multiple sclerosis (MS) is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body.

The cause of MS is still unknown – scientists believe the disease is triggered by as-yet-unidentified environmental factor in a person who is genetically predisposed to respond.

The progress, severity and specific symptoms of MS in any one person cannot yet be predicted. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease.

Within the CNS, the immune system attacks myelin — the fatty substance that surrounds and insulates the nerve fibers — as well as the nerve fibers themselves. The damaged myelin forms scar tissue (sclerosis), which gives the disease its name. When any part of the myelin sheath or nerve fiber is damaged or destroyed, nerve impulses traveling to and from the brain and spinal cord are distorted or interrupted, producing a wide variety of symptoms.

(Content: nationalmssociety.org Image: vice.com)

#multiplesclerosis #ms #curems #awareness #education #brainfog #health #chronicpain #chronicillness #nerves #damaged #brain #cns #nervoussystem #brainfog #mswalk #msfighter #personalizedcause

International Women's Day

Davis Orr

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Happy International Women's Day!

"I am not free while any woman is unfree, even when her shackles are very different from my own.” — Audre Lorde

#internationalwomensday #womensmarch #womensday #women #ladies #gals #girls #womensmarchonwashington #womensrights #equality #thefutureisfemale #female #progress #change #inspo #personalizedcause #feminist #feminism #gogirl #nastywoman

Rare Disease Day

Davis Orr

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Today is Rare Disease Day!

NORD is the official US sponsor of Rare Disease Day®, which occurs on the last day of February each year. On Rare Disease Day, millions of patients and their families around the world share their stories to promote awareness of the challenges, hopes and needs of those living with rare diseases.

A disease or disorder is defined as rare in the USA when it affects fewer than 200,000 Americans at any given time. 80% of rare diseases have identified genetic origins whilst others are the result of infections (bacterial or viral), allergies and environmental causes, or are degenerative and proliferative. 50% of rare diseases affect children.

Over 6000 rare diseases are characterised by a broad diversity of disorders and symptoms that vary not only from disease to disease but also from patient to patient suffering from the same disease.

Relatively common symptoms can hide underlying rare diseases leading to misdiagnosis and delaying treatment. Quintessentially disabling, the patients quality of life is affected by the lack or loss of autonomy due to the chronic, progressive, degenerative, and frequently life-threatening aspects of the disease.

The fact that there are often no existing effective cures adds to the high level of pain and suffering endured by patients and their families. Doctors are taught, "when you hear hoof beats, think horses not zebras." This is why those with rare diseases often refer to themselves as zebras and wear zebra print awareness pins.

#rare #raredisease #rarediseaseday #disease #disorder #genetic #geneticcondition #geneticdisorder #zebra #zebraprint #awareness #cure #treatment #medicine #uncommon #illness #chronicillness #chronicpain #personalizedcause

Start With Hello

Davis Orr

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One of the students at UCI sent in a picture of their pin from Start With Hello week, earlier this month, where they invited some local 7th graders to discuss social isolation and it's effects. Many socially isolated students end up suffering from depression, struggle with learning or social development, and sometimes take their pain out on themselves or others.

The Start With Hello campaign educates teachers and students on how to prevent social isolation. BECAUSE EVERYONE NEEDS A FRIEND, AND WE SHOULD ALL BE KIND TO OTHERS! And so today, on Stand Up to Bullying Day, it feels appropriate to share the picture they sent us. Isolation and bullying can cause many of the same consequences, so be good to one another. Stand Up to bullies, and be a friend to someone without one.

#latergram #standup #standuptobullying #startwithhello #social #isolation #endbullying #bully #bullying #awareness #kindness #love #friendship #benice #bekind #personalizedcause