Ehlers-Danlos Awareness Month is observed in May. Ehlers-Danlos syndromes are inherited in the genes that are passed from parents to offspring. They are categorized according to the form of genetic transmission into different types with many features differing between patients in any given type. The fragile skin and loose joints and tissue fragility is often a result of abnormal genes that produce abnormal proteins that confer an inherited frailty of collagen (the normal protein "glue" of our tissues).
“More awareness is needed for these often misdiagnosed and misunderstood conditions,” said Lara Bloom, International Executive Director of The Ehlers-Danlos Society and an Ehlers-Danlos Syndrome patient herself. “For too long, patients have had to wait years, even decades, for a diagnosis. Until an accurate diagnosis is made, patients cannot get the proper care they need to handle the many debilitating manifestations of their condition. Our goal is to make the Ehlers-Danlos syndromes so widely recognized that these patients get the care they need as soon as they present with symptoms.”
The awareness image for Ehlers-Danlos Syndrome is Zebra.
Personalized Cause supports Ehlers-Danlos Syndrome Awareness Month with: