Huntington’s Disease Awareness Month in May, sponsored by The Huntington’s Disease Society of America (HDSA), has launched a massive social media campaign called #LetsTalkAboutHD.
The initiative encourages anyone affected by Huntington’s Disease to share their experiences on social media through videos, photos or personal stories using #LetsTalkAboutHD. You can follow and contribute to the conversation on Twitter (@HDSA) and Facebook (facebook.com/HDSofA).
“LetsTalkAboutHD will educate the world about the devastating impact of Huntington’s Disease,” said Louise Vetter, CEO of HDSA. “HD impacts every individual and family differently and it’s time the world knows our story.”
Huntington’s Disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of carrying the faulty gene that causes HD.
Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Many describe the symptoms of HD as having, ALS, Parkinson’s and Alzheimer’s diseases – simultaneously.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with HD and their families.
Huntington's Disease Awareness Month is the time to educate others about Huntington's Disease. To learn more about Huntington’s Disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call (800) 345-HDSA.
The awareness color for Huntington's Disease is Blue.