Rare Disease Day
Rare Disease Day is observed on the last day of February each year. Its main objective is to raise awareness in the general public and with key decision-makers about rare diseases and their impact on patients’ lives. Rare disease patients and families, patient organizations, politicians, caregivers, medical professionals, researchers and industry will raise awareness of rare diseases through thousands of events all over the world.
Research is key. It brings hope to the millions of people, and their families, across the world living with a rare disease.
Rare Disease Day 2017 is therefore an opportunity to call upon researchers, universities, students, companies, policy makers and clinicians to do more research for the rare disease community.