Zebra Awareness Ribbon Pins
“When you hear the sound of hooves, think horses, not zebras.” This phrase is taught to medical students throughout their training.
Our custom zebra awareness ribbons and non-personalized zebra awareness ribbons support Rare Diseases. When searching our website, you may see a rare disease listed in several places - the cause may be associated with a color other than the zebra awareness ribbon. The reason for this is that often times a group has designated a specific color for a rare disease and does not use the zebra designation. Feel free to use the image or color that best reflects your efforts to raise awareness.
In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people. This definition was created by Congress in the Orphan Drug Act of 1983. Rare diseases became known as orphan diseases because drug companies were not interested in adopting them to develop treatments. The Orphan Drug Act created financial incentives to encourage companies to develop new drugs for rare diseases. The rare disease definition was needed to establish which conditions would qualify for the incentive programs.
Other countries have their own official definitions of a rare disease. In the European Union, for example, a disease is defined as rare when it affects fewer than 1 in 2,000 people.
There may be as many as 7,000 rare diseases. The total number of Americans living with a rare disease is estimated at between 25-30 million. This estimate has been used by the rare disease community for several decades to highlight that while individual diseases may be rare, the total number of people with a rare disease is large.
Denim Blue Jeans Awareness Ribbons
Our custom denim Blue Jeans awareness ribbons and non-personalized denim Blue Jeans awareness ribbons support rare diseases as designated by Global Genes®.
According to Global Genes®, rare diseases affect 1 in 10 Americans, 30 million people in the United States, and 350 million people globally. Over 7,000 distinct rare diseases exist and approximately 80 percent are caused by faulty genes.
The National Institutes of Health (NIH) estimates that 50% of people affected by rare diseases are children, making rare diseases one of the most deadly and debilitating for children worldwide.
Despite its size, the community lacks a unified voice, as only 15% of rare diseases have organizations or foundations providing support or driving research. It is estimated that 95% of all rare diseases do not have a single FDA approved drug treatment, and there are currently less than 400 treatments approved by the FDA for the nearly 7,000 rare diseases which have been identified. According to estimates from the NIH, it will take 10,000 years at the current rate of FDA drug approvals to find therapies for all people suffering from rare diseases.
Support the Global Genes® movement today by wearing your denim Blue Jeans awareness ribbon pin.